Welcome to Phineas' mom's personal page
Welcome to team Friends of Phineas for the annual Walk to End Epilepsy!!!!
As Phineas' mom, I have watched as my two sons have grown and developed - both at their own pace, with their own strengths and their own weeknesses. But, watching the little brother become the "big brother" is something so bittersweet. To watch the little one learn compassion, care and responsibility beyond the expectation of his age is in many ways a beautiful gift that cannot be received any other way. Of course though, it is heart-wrenching to see the little one read, write, and excel, while Phineas' brain continues to work against any meaningful progress in those areas. The seizures occurring continuously in his brain are sabotaging the will of this child.
Epilepsy is scary, unknown, unpredictable and challenging in so many ways. A constant fight with oneself to stay positive, to stay hopeful. The epilepsies are the world’s most common, serious brain disorders worldwide with no age, racial, social class, national or geographic boundaries. Seizures steal moments and memories, can change lives, impact development, affect learning and can even result in death. There are no cures.
Phineas has been suffering from a variety of seizures since he was 15 months old. Drugs, surgery, diets....so many therapies. No cure. But, the Epilepsy Foundation of Greater Los Angeles has provided our family with so much support along this scary and unknown path. They have supported us with advocacy, in school seizure care training for staff, informational workshops, family outings and camp getaways - all amongst a huge network of support.
For the reasons above and many more, we have banded together to participate in the Walk to End Epilepsy on Sunday, November 5, 2017 at the Rose Bowl Stadium in Pasadena to END EPILEPSY.
Your involvement provides care, advocacy and education today while investing in research and hope for tomorrow.
Your contribution makes a tangible and direct difference to families living with epilepsy. Thank you!
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