Annette Siefert's Personal Page for team Absence Minded
Did you know that Epilepsy is the most common serious brain disorder worldwide with no age, racial, social class, national nor geographic boundaries? Seizures steal moments and memories, change lives, impact development, affect learning and can even result in death. There is no cure.
As many of you know, we were rudely introduced to Epilepsy and its effects in 2009 when our son Casey began suffering small (Absence) seizures. They quickly turned into larger (Grand Mal) seizures that took a toll on both Casey and our family. Unfortunately, after 16 medications with sometimes devastating side effects, a ketogenic diet and countless alternative treatments, Casey still suffers from absence seizures each and every day and occasional Grand Mal seizures as well.
As a young adult, this has been an especially hard time for Casey. Having moved away for college, living on his own has proved challenging as he learns to deal with the seizures on his own. He has learned to further advocate for himself having experienced several Grand Mal seizures in the first few weeks of school. In light of this, he keeps a positive attitude and advocates whenever possible for the cause, and for that we are very proud of him.
The Epilepsy Foundation of Greater Los Angeles has been a huge support for Casey over the years. They treat him like family and have helped him meet many other teens suffering with Epilepsy. This has been crucial for him, and for so many others. They have helped our family by providing education and information, helping us make more informed choices for treatment and care.
For these reasons and many more, I am participating in the Walk to End Epilepsy on Sunday, November 5th, 2017 at the Rose Bowl Stadium in Pasadena to join in the fight to END EPILEPSY.
Please support our family's efforts by joining our team. If you are unable to make the event, we would so appreciate you making a donation, however small or large. Every donation counts, and they all add up. Your involvement provides care, advocacy and education today while investing in research and hope for tomorrow.
Your contribution makes a difference. Thank you!
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