Welcome to My Personal Page for our son JJ!
Epilepsy is the world’s most common, serious brain disorder. Seizures steal moments and memories, can change lives, impact development, affect learning and can even result in death. There is no cure.
For the reasons above and many more, I am participating in the Walk to End Epilepsy on Sunday, November 5th, 2017 at the Rose Bowl Stadium in Pasadena to join in the fight to END EPILEPSY.
Please support my efforts by making a donation. Your involvement provides care, advocacy and education today while investing in research and hope for tomorrow.
As a mother and my husband as a father to our beautiful JJ, we have met some amazing people on our journey, I have been blessed by many other families who have helped guide us to the right directions and paths needed to help our son. JJ was diagnosed with Epilepsy at 19 months of age,
JJ was also recently diagnosed with Lennox- Gastaut Syndrome. This very serious and rare form of epilepsy causes many problems; one, there are many different seizure types that occur. Jeremiah experiences tonic clonic (grand mal), petite mals (absence seizures), atonic seizures (drop seizures), tonic seizures (stiffening seizures) and lastly atypical seizures (conscious absence seizures). This syndrome is also very hard to gain seizure control, normally resistant to medicine, leaving patients life expectancy short due to SUDEP (sudden unexpected death in epilepsy). JJ has spent alot of time being hospitalized, Time spent with many different doctors and speciality appointments, blood work for current labs, suffered horrible side effects from various meds, has had uncontrolled seizures leaving him unresponsive. As a mother, its been the hardest battle i have faced watching my son suffer and not be able to do anything to help him. Which is why i make it my goal to stand beside him and fight in honor of my son to not just raise awareness but to also help bring in donations to help fund special programs that the Epilepsy Foundation helps families with Epilepsy with.
Please join us and help us by sharing our story, sharing our page and by making a pledge to make a difference and help save lives!! Thank you for your time and your commitment!!!
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