2017 Walk to End Epilepsy

On Our Way To Greatness

At the age of 18, I was diagnosed with Genetic Epilepsy specifically prone to grand mal-seizures. I was alone while shopping when I experienced my first seizure. I was standing in line to checkout and out of nowhere I fell flat on my face and my lights are out. Once I awoke I had no memory of what had just occurred. When I came to, I was lying on the floor and next to me were an EMT, fireman, and policeman asking me a series of questions.                                                                                              

Of course, I had no answers, I myself was not aware of what just happened. I remember my brain being foggy and had no idea where I was but soon realized that I was in an ambulance. I was rushed to the emergency room where the medical staff immediately began to run tests.

Result? I was placed on an anti-convulsant medication to manage the seizures. Then to my shock, the doctor continues with that I will probably have to take this medication until I reached menopause when I should grow out of it. Ironically, I never thought that I would look forward to menopause especially that I was only an 18-year-old girl at the time.

Over the next decade, I struggled learning which medication would work best for me in preventing my seizures. It was a rollercoaster of emotions trying new meds and having breakthrough seizures. My license was revoked several times, my work hours had to be accommodated and my independence was very limited.

I finally got to a place in my life where the meds were effective and I lived seizure free for some time. I went almost 4 years without an episode!! It was so empowering. I felt great. I thought I was finally in control.

This year my epilepsy has kicked my ass with 3 seizures since January! Confused, frustrated and bitter I realized I needed support beyond my family and friends. I have never taken advantage of the resources that were made available to me, so I felt it was finally time for me to do research. I came across forums, groups, and discussions for the Epilepsy community. It all felt like they were talking to me and about me, very familiar. They were discussing the very things I was feeling and have experienced. It made me realize I am not alone.

Upon further research, I stumbled upon the Walk to End Epilepsy website. I felt in my heart that not only did I need to participate I also needed to be a leader. So I decided to assemble my own team and become a Team Captain. My team name is, "On Our Way To Greatness". I felt it spoke to me because it represents progress, change, and encouragement. My end goal is to educate on the topic of Epilepsy. If I can teach just one person the basics of seizure first aid then I would have made a difference. I want to help cure Epilepsy before I reach menopause. :)

Supporting the "Walk to End Epilepsy" is so important to me because it raises funds for this much underfunded disease. Contributions can be used for research, educational purposes and community support resources.

Thank you for visiting my page. Your support helps people with Epilepsy get ON THEIR WAY TO GREATNESS! See below for a little background on Epilepsy. #endepilepsy#walk2017#grateful

Epilepsy is the most common serious brain disorder worldwide with no age, racial, social class, national or geographic boundaries (World Health Organization). Seizures steal moments and memories, can change lives, impact development, affect learning and can even result in death. There is no cure. For the reasons above and much more, I am participating in the "Walk to End Epilepsy" on Sunday, November 5, 2017, at the Rose Bowl Stadium in Pasadena to join in the fight to END EPILEPSY.

I kindly ask you to support my efforts by making a donation. Your involvement provides care, advocacy, and education today while investing in research and hope for tomorrow. Your contribution makes a difference.  Anyone interested in joining the walk please see Event Info above, it is going to be GREAT! 

Thank you!

 

Team Captain,

Jennifer

 

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