For the past 10 years our family has been affected by epilepsy. Two of our four children started having seizures in 2006 and 2007. After consulting every specialist in the world, we were told this often happens. 1 in 26 people will have epilepsy in their lifetime. We have learned over time, this is a widespread epidemic with limited resources. We are grateful to have found excellent doctors at UCLA and Children's Hospital of Los Angeles who have helped our children (and us) cope with this disease and find the right combination of medicaiton to control their seizures so they can live functional and happy lives.
Chloe was diagnosed with Juevinile Absence Epilepsy in 3rd grade and lives with absence seizures that can affect her memory, concentration and energy level. She has had over 100 grand mal seizures and was in and out of high school as she tried to cope with the seizures and all the side effects of the medication. Her grand mal seizures are now in control when she takes her medication and manages the triggers. Under the care of Dr. Sankar and Dr. Nordli, she continues to make tremendous progress. We are so proud that she made it thorugh high school and is now a sophmore at Point Loma Nazerne University in San Diego studying to be a teacher.
Charlie was diagnosed in 7th grade with Primary Generalized Epilepsy and experienced several grand mal seizures in high school. His seizures are now under control. He is doing extremely well and is finishing his senior year at Montana State University.
Having an unpredictable disease that can render you unconsious at any point in time with no notice, affects the whole family. Chelsea and Julia have been supportive and loving siblings, and we have all learned to work together as a family. We were able to cope with all these challenges thanks to the excellent doctors and staff at UCLA and Children's Hospital, and to the Epilepsy Foundaiton of Greater Los Angeles for the education and support network. We are extremely grateful.
WHAT WE CAN DO:
The epilepsies are the world’s most common, serious brain disorders worldwide with no age, racial, social class, national or geographic boundaries. Seizures steal moments and memories, can change lives, impact development, affect learning and can even result in death. There are no cures - yet.
While we have found the resources to help our own children, we learned that living with Epilepsy and finding the right doctors and medicaiton is not easy. We hope to help others find the resources they need to live comfortable lives. For the reasons above and many more, we have banded together to participate in the Walk to End Epilepsy on Sunday, November 05, 2017 at the Rose Bowl Stadium in Pasadena to END EPILEPSY. We are hoping our familiy team raises $25,000 this year.
Please support our efforts by making a donation to the Nelson Family Team, or walking with us on November 5th. Your involvement provides care, advocacy and education today while investing in research and hope for tomorrow.
Thank you! Love, Jolie and Chuck Nelson